Aaron was born on 8th July 1993. He has Sanfilippo A, Aaron loves watching Barney and looking at books and photographs. He has a gastrostomy but sometimes eats puree foods. He no longer talks but laughs so loud at times. His big blue eyes dance when people talk to him and his smile breaks everyone's hearts. Aaron is a gift and has taught us so many things over the years especially love. Aaron lives in United Kingdom with his two brothers Ryan 10 and Liam 4 and of course us, mom and dad. Aaron is a very special young man..
Ben, born 9 February 1995 Hunter Syndrome, Ben loves to kick a ball around or just play with bat and ball. He also likes to watch sport on TV. Apart from The Wiggles and Hi-5, his favourite movies are Grease, Titanic, Sound of Music, Wizard of Oz, Pretty Woman, The Full Monty (just to name a few!). Ben lives in Penrith, NSW..
Benedict, had Sanfilippo Syndrome. Ben was born on 24 February 1989. His favourite occupation was eating anything and everything he could get his hands on. Ben lost many of his skills but still lit up a room when he gave one of his famous smiles. Sadly Ben passed away on 6 April 2002 and is greatly missed by all..
Cameron, born 6 July 1998, Hunter Syndrome. Cameron loved music and videos. Some of his favourites were Grease, The Pirate Movie, Xanadu, Blue Hawaii and Star Wars. Cameron also loved Hi-5, The Wiggles and Dora The Explorer. Cameron attended Chalmers Road School at Strathfield 5 days a week. He enjoyed swimming, walking, parties and riding on buses, trains and horses. He also loved to watch his brother play football. Cameron is seen in the first photo at his school Christmas presentation in 2008 and the other is with his 8 year old brother Daniel, who was his biggest fan! Cameron sadly passed away suddenly on 4 May 2009. Cameron gave great joy to all who had the pleasure to meet him. He will be missed greatly but always remembered by all..
Chloe was born on 4 November 2000 and suffers from Hurler-Scheie Syndrome. Chloe enjoys going to preschool 3 days a week and playing with her 3 year old brother. She is a very happy go lucky little girl, nothing gets her down, she always has a smile on her face. She is looking forward to going to school in 2006 with her 2 older sisters. Chloe lives in Morayfield Queensland..
Danielle, born 23 November 1992 had MPS I, Hurler Syndrome. She passed away peacefully on 6 June 1998 with her family and is sadly missed. Danielle loved to sit in her comfy chair watching her ABC videos. She especially loved the Bananas in Pyjamas, Noddy and Thomas. She loved being home with her family in Churchill, Victoria and absolutely hated going to see doctors!.
Edwin was born on October 28, 1996 Hunters Syndrome. Edwin likes to see SpongeBob he also likes to Play Gamecube his favorite Game is Sonic DX and Sonic Shuffle. Edwin is really loved by all who see him, he is really friendly. Edwin lives in Pomona California with his family. We all love Edwin ...Very Much..
Jack, born 2 April 1995 Sanfilippo Type B. Passed away peacefully at home on 22 November 2008, aged 13 years. Jack loved the Wiggles and Playschool videos. Jack enjoyed watching all the people doing lots of activities and being with family members and dogs Abbey, Jett and Bosco. In Jack's last few years he was confined to a wheelchair and could no longer take food by mouth but he had lots of wonderful carers who came and helped look after him and he was constantly surrounded by his loving family. Jack lived in Sydney, NSW. A gentle and beautiful soul, he will be forever in the hearts of his family and all who knew him..
Jack, born 2 June 2000, diagnosed with Hurler Syndrome in July 2001, Jack underwent a successful Bone Marrow Transplant on 1 February 2002. Jack loves school, watching The Wiggles, playing in his playground and swimming. He also enjoys helping mum to cook but is not interested in licking the beaters. Jack still loves McDonalds, chocolate and ice-cream! Jack lives in Brisbane, Qld..
Jacob is 13 years old he has Sanfilippo type A. He was born January 18, 1994. He loves movies and eating also being around his family. Jacob is now in a wheel chair but still a very happy boy. We love him so much. He lives in the little town of Big Sandy TN. Here are two pictures of him and we hope one day for a cure..