Jakeline and Valtercie

Foto Jakeline e Valterci smallI am very happy to be able to get in touch with your society... because in this way I realise there are other cases like mine in different parts of the world who share the same experiences. I have two boys - Jakeline (16 years old) and Valtercie (15 years old), MPS sufferers with Morquio Syndrome and another yet undefined. Both are wonderful boys, united and loving and also much loved in the community where we live in Goiania Brazil.