Linking Hand Winter 2005

 

2005 win

Inside this issue:

  • Presidents Report page 2
  • From the Editors page 4
  • For the Kids page 6
  • Society News starts page 8
  • Family Story Questions page 10
  • Family Story - Jennifer Johnston page 11
  • Family Story - Colin Arrowsmith page 13
  • New Zealand Society News page 14
  • Medical - Preimplantation Genetic Diagnoses page 15
  • Medical - Research, Further Directions page 20
  • Largest meeting ever for Mucolipidosis page 26
  • Medical - Launch of Naglazyme for MPS VI page 29
  • Lobbying updates page 30
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