Please join the Australian MPS Society to launch ‘Kaitie the Courageous’ a book that tells the story of brave nine year old South Australian girl, Kaitie, who is living with Mucopolysaccharidosis type 1 - Hurler syndrome (MPS1H).
MPS is a very rare and debilitating genetic disorder, but one that is potentially fatal. Kaitie’s story spotlights the experiences of Australian families impacted by MPS and the challenges and inspiration for those with rare diseases to live life to the full.
To launch ‘Kaitie the Courageous’ you will hear from Kaitie’s mother, Kimberlee Francis, as well as experts in MPS.
Date: Wednesday May 7, 2014
Time: 10:30am for presentations and morning tea
Location: The Women’s and Children’s Hospital in Adelaide
RSVP: 5 May, 2014.
Contact: Rachel Stanton,
02 8281 3268