The New Zealand Organisation for Rare Disorders (NZORD)'s website is now available online. It is designed to be a resource for clinicians, researchers and policy agencies as much as it is for patients and families affected by rare disorders, and their support groups.
NZORD hopes it will be of interest and use to you, despite its obvious New Zealand bias in some sections. Many of the resources on rare diseases, information databases, research, genetics and other topics, will be relevant to people wherever they live. NZORD is committed to building networks and partnerships between patients/families, researchers, clinicians and policy agencies, to speed knowledge gain and treatments for rare diseases. They see strong international links between all the stakeholder groups as an essential part of progress. Feedback is welcomed. The site can be found at http://www.nzord.org.nz..