This Is about me at the hospital and what I do
The journey so far of Alex, with MPS1 Hurler-Sheie.
This presentation describes some of the challenges facing Peter Chalouhy with his MPS disease. Peter is a strong oponent and will hopefully beat that disease.
Support Caleb Faria who is suffering with MPSII Hunter Syndrome.
The story of a family whose oldest son has Sanfilippo Syndrome MPSIIIA
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© 2013 Mucopolysaccharide & Related Diseases Society Aust. Ltd