Jack suffered from a rare genetic disorder called Sanfilippo Syndrome or MPS III. There is currently no cure. This is a tribute to Jack's all too short life by his Auntie Jo..
An awareness video for a rare condition known as MPS and the Society set up in Ireland to help families and there loved ones suffering from this condition. MPS Awareness day is on the 15th of May 2013..
15 Мая - Международный День Мукополисахаридоза (МПС). Дети Украины.
May 15 - International Day of MPS. Children of Ukraine.
MPS is a group of rare diseases.
MPS is short for Mucopolysaccharidosis.
MPS Awareness Day is May 15! (worldwide)
This is my video about my daughters journey so far with MPS1 Hurler Syndrome. She inspires and encourages me every day. And every day i am grateful that she is here with us to teach and to touch the hearts of everyone she meets.
links at the end of the video are:
the song is Janelle - Amazing. no copyright infringement intended.
This presentation describes some of the challenges facing Peter Chalouhy with his MPS disease. Peter is a strong oponent and will hopefully beat that disease.
Support Caleb Faria who is suffering with MPSII Hunter Syndrome..