Written by Amy Russo, illustrated by Karen Erasmus A beautiful children’s book, ‘Kaitie the Courageous’ tells the story of brave 9 year old South Australian girl, Kaitie, who is living with Mucopolysaccharidosis type 1 - Hurler syndrome (MPS1H). MPS is a very rare and debilitating genetic disorder, but one that is potentially fatal. Kaitie’s story spotlights the experiences of Australian families impacted by MPS and the challenges and inspiration for those with rare diseases to live life to the full. Thank you for purchasing ‘Kaitie the Courageous’. All funds raised from the purchase of this book goes to the MPS & Related Diseases Society and enable us to provide more information and resources, peer support, advocacy, research and financial assistance to our members – children and adults affected with MPS and related diseases and their families.
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