Our Stories

Meet our People

Meet Talia I’m a Sibling My little sister was diagnosed with MPS when she was four years old. At...

Meet Susan I’m a carer – Susan Cooper’s Story Susan Cooper describes being a carer as an amazing...

Meet Harmoney I’m a Parent With five children, two of whom have MPS III, Harmoney Hudson has her...

Meet Hazel I’m a Parent When her daughter Jessica was diagnosed with MPS I, Hazel Coles didn’t...

I’m a child with MPS – Jessica Coles Story My name is Jessica. I am 14 years old and have MPS 1 Hurler...

I’m an adult – Heather Anderson’s Story skip render: ucaddon_nav_menu Heather Anderson...

I’m an adult – Sam Prior’s Story Sam Prior was diagnosed with MPS VI 25 years ago, well before...